Date: 27th May
Time: 14:00 - 16:00 CET
The zoom link will be distributed to the participants closer to the event.
Please note that ammendments may occur.
Speakers: Santa Slokenberga (Uppsala University), Katharina Ó Cathaoir (University of Copenhagen), Kaisa-Maria Kimmel (University of Lapland) and Oda Bakken (Oslo University Hospital).
Short national updates related to genetic data in health care from a legal perspective will be given from Sweden, Denmark, Finland and Norway.
Speaker: Eirik Joakim Tranvåg, senior adviser at the Norwegian Biotechnology Advisory Board
The use of genetic data is a key element in the personalized medicine paradigm, where better health can be achieved by tailoring prevention, diagnostics and treatment to each patient’s individual biological characteristics. This talk will give a short overview of how genetic data is currently used in personalized medicine in Norway and how its use can be imagined in the future. In the end some ethical concerns related to personalized medicine will be discussed.
Speaker: Sandra Liede, lawyer, Regulatory Affairs at Healthtech Finland
Sandra Liede from Healthtech Finland shares insights on the use of genetic date within business contexts, and experiences from the health technology sector regarding secondary use regulation in Finland.
Speakers: Mirjami Tran Minh, Communications and Public Affairs Specialist, Cancer IO, Helsinki University and Kaisa-Maria Kimmel, researcher, Faculty of Law, University of Lapland
Mirjami Tran Minh from the University of Helsinki coordinated Cancer IO research project and Kaisa-Maria Kimmel from the University of Lapland discuss equal access to health care, and structural challenges specific to treatments involving the use of genetic data.