Date: 13th January
Time: 10:00 CET
Determining the extent to which current GDPR and other data regulations are sufficient to cover the use of patient data:
how does specific provision for scientific research within General Data Protection Regulation (GDPR) differ across European countries
what frameworks, principles and norms have so far been developed to ensure an ethical approach to data sharing in health research?
what additional data governance requirements might be needed?
Addressing ethical concerns with regards to patient privacy and confidentiality and ensuring any potential risks are transparent to all concerned - to what extent is anonymisation whilst allowing effective use of patient data achievable?
Managing the balance between patient privacy rights and the benefits of data-sharing
understanding patients’ expectations of research and the societal benefits and value from it
how do we generate and maintain patient trust with regards to their personal information?
Exploring the current and potential uses of AI and digital technologies for healthcare data and the implications of this:
legal and regulatory compliance
patient trust & engagement
Dr Deborah Mascalzoni, Research Group Leader, Institute for Biomedicine, EURAC; Senior Researcher, Centre for Research Ethics & Bioethics, Uppsala University & Centre for Health, Law & Emerging Technologies (HELEX), University of Oxford
Prof Dr Ana Nordberg, Associate Senior Lecturer, Faculty of Law, Lund University
Dr Marjut Salokannel docent, Founding Partner, Salokannel Research & Consulting SaReCo Oy
Dr Mahsa Shabani, Assistant Professor in Privacy Law, Ghent University
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